Ama’s life has been filled with numerous hospital stays, needle pokes and seizures because of a rare genetic disorder.
Due to her condition, she is wheelchair-bound, non-verbal, and very susceptible to the elements and infection. Despite this, Ama, 5, loves being outside, especially with her siblings and loved ones. Her wish to have a camper was a way for Ama and her family to spend lots of outdoor quality time.
"Our whole family was able to be involved with this wish, we really wanted it to be something Ama would want," Ama’s mom, Brenda, said. "Camping is a relaxed atmosphere and Ama can be inside or she can be outside going on walks with us or laying out on a blanket."
The family has already taken two camping trips, allowing for precious family time of playing, eating s'mores, enjoying the outdoors, and enjoying each other.
"Taking these camping trips only helps us draw closer as a family and that makes my Mom heart so happy," Brenda said. "For our family this wish meant quality time together creating family memories, funny stories, and positive sibling interaction."
Ama’s wish has created a worry-free zone that provides a respite from focusing on the next hospital visit or the possibility of another seizure.
“Make-A-Wish gives families an opportunity to look into the future in a positive way,” Brenda said. “It gives them a chance to dream a dream and actually get to watch it come true. Make-A-Wish creates happiness and joy where sadness, fear and worry abide. The joy, smiles and laughter this wish has brought our family is priceless. The memories we are creating are priceless.”